|
| What
Qualifies a Child? |
- The
child must have a life-threatening illness
- The
child must be under the age of 18 at the time of referral
- The
child cannot have received a prior wish from a wish-granting
organization
|
| Who
Can Refer a Child? |
| Out
of respect for the kids and families we serve, and out of concern
for their privacy, children who may be eligible to receive a
wish can be referred by one of only three sources: |
-
Medical professionals treating the child (such as doctors,
nurses, social workers, and child life specialists)
- A
parent or legal guardian of the potential wish child
- The
potential wish child themselves
|
| What
are the Benefits of Wish Granting? |
- Helps
kids forget about being sick
-
Is part of the treatment and recovery process
- Lets
the family be together
- Reminds
kids that life is worth living
- Revitalizes
the spirit (a healthy spirit helps to create a healthy body)
- Brings
magic and laughter back into a child's life
- Provides
a chance to fulfill a dream
- Encourages
kids to keep making plans for the future!
|
The
purpose of the Make-A-Wish Foundation is to grant the wish
of each child under the age of 18 who has a life-threatening
medical condition, i.e., a progressive, degenerative or malignant
medical condition that has placed the child's life in jeopardy. |
|
|
"One
of the reasons that I love my job is that I get to work with
the St. Jude's Affiliate Clinic. The children and their families,
in addition to the medical staff, are a tremendous source
of strength, hope, and faith for me... Most of this love and
faith is created independently of me; however, one service
that I am able to provide to the children that helps create
even more hope and laughter is a Make-A-Wish referral. I will
never forget the power of a wish granted to a little girl
that I worked with in the past. She had a diagnosis of cancer
and a fear of pain. Every time that she came in to the hospital
she was quiet, had a sad face, and cried often. Despite their
best efforts, the medical staff was not able to bring her
out of her shell. However, once the referral was made to the
Make-A-Wish Foundation of East Tennessee, there was now a
topic that the little girl enjoyed talking about with the
doctors, nurses, and other medical staff. A little girl who
had seldom smiled while in the hospital now smiled in spite
of herself at the mention of her wish. The power of her wish
brought her joy as she created her perfect wish, made travel
plans with her family, discussed the details of the trip with
the medical staff, and showed pictures from the trip to anyone
who would listen afterwards. While her wish did not change
her diagnosis it did bring tremendous joy during a difficult
time of treatment."
Sarah
Orsbon
Volunteer & Oncology Social Worker |
|
MEDICAL
INFORMATION |
This section contains a list of specific medical conditions that
qualify a child for a wish.Medical conditions not included in this
list may also qualify a child based on the life-threatening condition
as defined above. It is not the disease or condition itself that
qualifies the child, but the fact that, at the time of referral,
the disease or condition has become life-threatening as defined
above. |
| Cardiology
|
- Dilated
Cardiomyopathy
- Pulmonary
Artery Hypertension
- Kawasaki
Syndrome with Significant Coronary Involvement
- Transposition
of the Great Arteries with Poor Ventricular Function
- Complex
Congenital Heart Lesions
|
| Gastroenterology |
- Congenital
Biliary Atresia
-
End Stage Liver Failure, Post Infectious, Toxic or Vascular
-
Short Bowel Syndrome with Total Parenteral Dependence
-
Storage or Metabolic Diseases with Organ Impairment
|
| Hematology/Oncology |
- Chronic
Congenital Hypoplastic Anemia (transfusion dependent)
-
Aplastic Anemia (including Fanconi's)
-
Sickle Cell Diseases (organ impairments or life-threatening complications)
-
Severe Agranulocytosis
-
Thalassemia Major
-
Cancers that require ongoing treatment, including chemotherapy,
radiation, bone marrow or stem cell transplant
|
| Immunology |
- Congenital
Immune Deficiencies with known limitations on life span, or requiring
bone marrow transplant
-
Acquired Immuno-Deficiency Syndrome (HIV infection with symptoms
and/or significant immune suppression)
|
| Nephrology |
|
| Neurology
|
- Degenerative
Gray Matter Disease
-
Degenerative White Matter Disease
-
Spinal Muscular Atrophy
-
Muscular Dystrophy (rapidly progressive cases)
|
| Pulmonology |
- Cystic
Fibrosis (with moderate to severe progressive lung disease)
|
| Rheumatology |
- Systemic
Lupus Erythematosus with life-threatening complications
-
Dermatomyositis
-
Scleroderma
|
| Transplants |
- Bone
Marrow or Stem Cell Transplant
-
Solid Organ Transplant
|
| Urology |
|
FREQUENTLY
ASKED QUESTIONS |
| Does
your current Purpose Statement now expand the pool of potentially
eligible children you now serve? |
| |
No.
It simply clarifies our eligibility parameters, which for many years
had been subject to varying interpretation by many referral sources.
Its primary qualifier describes in greater detail what we mean by
a "life-threatening medical condition," i.e., a progressive,
degenerative or malignant medical condition that has placed the child's
life in jeopardy. |
| Regardless
of your guidelines, I've heard that a child must ultimately be terminally
ill in order to receive a wish. Is this true? |
| |
No.
By eliminating the reference in our previous Purpose Statement about
serving "children with terminal illnesses," our revised
Purpose Statement now clearly establishes that children need not be
dying in order to be served by the Make-A-Wish Foundation®. It
also reinforces the life-affirming aspect of our mission: to grant
the wishes of children with life-threatening medical conditions to
enrich the human experience with hope, strength, and joy. |
| Is
there a minimum age for children that you serve? |
| |
The
Make-A-Wish Foundation serves children who are under the age of 18
at the time of referral, and at least 2½ years of age at that
time. However, in those cases where a child's physician determines
that a child under 2½ will not live to that age, that child
may qualify to receive a wish from his or her local Make-A-Wish®
chapter. Contact your local chapter for more information. |
| I
noticed that your Mission and Purpose statements now refer to life-threatening
"medical conditions" instead of "illnesses." Does
that mean that a child with a trauma-related condition (i.e., severe
burns, injuries from accidents) would also qualify for a wish? |
| |
Maybe,
but this depends squarely on the outcome of the trauma-related condition.
If a severe injury results in a medical condition that is progressive,
degenerative, or malignant, and has placed the child's life in jeopardy,
then yes, a child would medically qualify. If a trauma case does not
result in a life-threatening medical condition as described here,
the child would not medically qualify. |
| What
kinds of medical conditions typically qualify a child to receive a
wish? |
| |
Most
qualifying conditions fall under one of the following categories:
Cardiology, Gastroenterology, Hematology/Oncology, Immunology, Nephrology,
Neurology, Pulmonology, Rheumatology, Transplants, and Urology.
Please
Note: Under each category of the Make-A-Wish Foundation's Medical
List, many conditions contain specific qualifying criteria. Your
local Make-A-Wish chapter can provide any necessary clarification
on any specific condition as necessary. |
| What
if a child's illness does not appear on your medical list? |
| |
The
Foundation's Medical List includes conditions for each category that
are most common among the children we serve. However, medical conditions
not included on the Foundation's Medical List may also qualify a child
for a wish based on the life-threatening condition as defined previously.
Check with the child's referring physician for any necessary clarification
on a life-threatening medical condition that does not appear on this
list. |
|
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